The LION-ELSI study focusses on several key areas important to understand views and attitudes of cancer survivors towards online supervised exercise. We hope to understand what motivates and prevents survivors to exercise from home.
This study broadly consists of two parts:
- Theoretical groundwork: based on literature and European national and international legislation and legal and ethical studies.
- Empirical research: Focus groups, survey research, quantitative preference study, and a concept mapping study
The LION-ELSI study is conducted at five study sites in Europe (SE, DE, NL, PT, ES). Two live focus groups will be conducted in each country. The focus group sessions are focused on attitudes of cancer survivors regarding online exercise. This will inform the development of the survey and eventually benefit the development of the online exercise program.
Insights from the focus groups across all five European sites will inform the content of the survey. This survey will be circulated by the research team at the Netherlands Cancer Institute (lead site). The themes that will be included in the survey relate to both patient characteristics (such as motivation, activity levels, and environment) and perspectives of patients on the exercise program.
At a later stage we will be conducting a quantitative preference study and a concept mapping study. The quantitative preference study will assess which characteristics of the exercise program are most ideal for optimal participation.
The concept mapping study will be conducted with patients who have completed the exercise intervention (LION-RCT). The concept mapping study asks participants to share their perspectives in response to a focus question. This approach allows researchers to efficiently gather important experience to optimize the exercise program.
Planning
At each site, we aim to recruit 16 patients for the focus groups and 100 patients for the survey. The majority of the focus groups will be conducted in the first half of 2024. The survey will be administered in 2025. If you want to have more information about the LION-ELSI study, you can send an email to e.d.jongh@nki.nl.
